About the The Sickle Cell Society
The Sickle Cell Society was founded in 1979 by a group of healthcare professionals and people affected by sickle cell disorder. It is the principal health charity in Britain working for people with sickle cell disorder.
Sickle cell disorder collectively describes a group of chronic, debilitating, hereditary blood conditions in which a mutated form of haemoglobin distorts the red blood cells into a crescent or sickle shape at low oxygen levels. The resulting ‘sickle cells’ obstruct blood flow, which can lead to severe body pain (called a crisis), anaemia and damage to body tissues and organs over time.
Sickle cell disorder affects mainly people of African, Asian, Middle Eastern and Mediterranean ancestry.
Up to 15,000 people in the UK are believed to have sickle cell disorder and 300 babies are born annually with the condition. 240,000 people are thought to be carriers of the sickle gene.
The Sickle Cell Society’s Education Fund provides financial support for individuals who miss out on school / college and need extra tuition, or help to individuals who require IT support.
The Children’s Expert Patient Programme runs workshops for young people with a long term medical condition to help them increase their confidence, better manage their condition and improve their quality of life.
Sickle Cell Society Contact Details
Address: 54 Station Rd Harlesden London NW10 4UA
☎ 020 8961 7795